• lifeinlarkhall@lemmy.world
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    2 months ago

    I had somewhat similar but my autism and ADHD were overlooked until I was an adult. I was diagnosed with bipolar, schizo affective disorder and a scattering of others. I was put on;

    Efexor 400mg - still can’t get off this though I am down to 225mg

    Seroquel 1300mg - which is an insane dose. I was 40kg (teenager) when I started this medication, a year later I was 70kg. I am still struggling with my weight and down to 100mg. For context, they say 600-700mg is the standard for a severe schizophrenic adult. I was an underdeveloped teenager (as in underweight, “failure to thrive”, lack of nutrition etc) and I was not experiencing psychosis. I had years where I could barely get from the bedroom to the lounge room because I was that sedated.

    Lithium - 1000mg.

    And I would be here all night to list every medication. Seroquel was the worst - it has significantly reduced my quality of life and my life expectancy and contributed to developing other health conditions.

    So the issue is ANY misdiagnosis. That’s the conversation to have. Mental illness and neurodivergent conditions are all extremely difficult to get right and that’s an important discussion to have. But when we start targeting one or two conditions; autism and ADHD, that’s not a discussion in good faith - it’s a discussion with an agenda.

    I have cPTSD - which I have been told is from drumroll the medical system (as well as childhood trauma). Medical trauma is a true cruelty because sadly, you can’t avoid being re-traumatised because you can’t avoid the medical system… especially when you have chronic conditions and disabilities. You literally have to continue engaging with the system that has traumatized you. Repeatedly. Medical trauma is another important discussion.