Darn, that’s rough. I agree AI has been massively helpful in the never-ending search for answers. It has been able to quickly find case studies of people with situations like mine. It’s good at finding patterns between things that people wouldn’t think of. Also very good at explaining test results and tests to try. But it’s important to check everything it says thoroughly, of course.

I know exactly what you mean about minor effort = sore muscles. I’m at the point where exerting too much force can cause pain that lasts for days, even weeks. I get fatigue but not as bad as yours. Extreme daytime drowsiness is a neurological symptom of many diseases, for example MS and myotonic dystrophy.

Doctors didn’t take me seriously either for the first 7 years until I nearly lost the ability to walk. And I’m glad I did, because doctors truly only believe what they can see. I’m sure you know that speech problems can indicate all sorts of serious problems. I’m surprised your doctors aren’t more concerned about that.